I am cruising thru this site again today trying to pick up some useful information, as my doctors are 'baffled'. Great.
Since I wrote, I've seen 3 dental specialists, had a tooth removed 11/16 and another one 12/5 in the hopes that it would solve the problem. Horrible jaw pain not as bad, but tori now ulcerating and oh so sore. The lump under/along my jaw is bigger and very very sore. Saw my onc and she said blood work is all borderline, but within limits. Also, that jaw cancer is so rare, I can be assured its not cancer. Saw my 3rd oral surgeon who is also a MD, and he said he was baffled and come back in 2 weeks. I cried and said that was not an option. So he got me in with the top ENT the next day. So they ordered a mri of head and neck DX benign jaw tumor. They are going to discuss and go from there. My trigeminal nerve now involved...tingling and twitching on upper cheek. My neck neck muscles are still so sore...I find that strange. The top mandible is now joining in the inflammation. What fun is life when you can't eat or talk and can only live to get thru the workday so you can continue paying the doctors? As I told them, I feel like I have the flu without the cold. And I am OVER the pain pills !!! It takes the edge off, but doesn't block the rawness in my mouth. I have viscous lidocaine, but its the same as my Anbesol and tastes worse! Ruthanne, thanks for the encouragement and 'listening'. I do have bone spurs in my neck...could this be aggravating facial and mandible nerves? The MRI better show something!!!!! I am losing my mind !! I dreamt my mother (gone for 5 years) took me to an insane asylum....