I case anyone else is checking this thread out due to similar symptoms...I don't have an answer yet, but I am frantically working on it! Now my jaw hurts all the way to my chin. I have not slept well in 3 nights...I am so hungover from pain meds. I have a crown over the gum area that hurts most (8xrays and panorama= no infection) so I tried to pull it off with a pair of pliers tonight. I am desperate!! I don't know what I hoped to find. I hit the roof of my mouth so hard, it bled. Had some hot chocolate and called the ER# for my regular dentist. I told him about my mouth and he said he would see me 1st thing tomorrow am.
I think this frustration comes from the 2nd visit to the ENT today. I told him everything was the same and what did he have to offer? He didn't have a plan B frown I just got up and walked out. He came with me, didn't charge me and gave me the name of several neurologists. I called and the earliest appt. is in December. I am not going to make it to December. So I gave up on them. I called my onc, and she said I could have a pet scan, but will probably show inflammation and not provide a diagnosis unless I have rampant cancer throughout my brain and bones. That's a costly test too. And a week away with scheduling/ins/etc.
I am not going to be able to keep my job if I don't get well fast. Its only me here, and I'm so tired. any ideas?