Hello everyone. I hope you all enjoyed the holidays. I did, and then yesterday, I had my first radiation treatment. My tongue felt a little sore afterwards, which I noticed as I ate dinner. I then woke up in pain in the middle of the night. This morning I rinsed my mouth out and spit out dried blood. I took a flashlight to my mouth and saw that the roof of my mouth had dried blood all over it. Yuck! Am I imagining that my mucous is already thickening after one treatment?

All I can say is wow, I knew it was going to get bad, but already after one treatment? I know it's going to get worse, I just thought I had a couple of weeks before it got there.

What pain killers have helped you? I currently have in my arsenal Codeine, Percocet and Vicodin. I took an Ativan yesterday which really helped me to relax during the radiation. I also have Zofran and Compazine for chemo, which I start tomorrow.

I don't have the Rxs for the saline oral rinse, nor my special toothpaste/mouthwash. I have to pick up the fluoride tray ASAP.

I had my feeding tube placed on Friday, along with the chemo port. I've been in pain from that.

Also, foods. I've been trying to enjoy that which I know I may not be able to eat again. I've also been good about getting enough fruits and veggies. I have a feeling that before long all I will want is a smoothie or Ensure. Any tips? I'll search through the forum for advice.

Thanks everyone and be well!


10/2/12 Surgery Dx Stage II SCC RLT
11/12/12 Further tongue resec and SND. 3 of 22 lymph + SCC Stage IVa
11/22/12 Hospitalized for infection incision at neck
12/5/13 PET scan tumor at BOT
12/26/12-2/27/13 RT and Cisplatin
4/1/13-5/17/13 3 rounds of Cisplatin, Taxotere and 5-FU
7/19/13 Pet Scan possible recurrence
8/23/13 2nd op at MSKCC, CT Scan
8/31/13 MRI. Both show sizeable mass
9/11/13 CT-guided needle BX + SCC
10/1/13 Erbitux, Cisplatin and Taxotere
2/14/14 Passed away