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#15908 07-05-2004 11:07 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Kelli,
Welcome to your community. I am sorry you have to join our "club", even though it is filled with many characters, full of character. It is so unfortunate you have to drive so far for your care. There are opporunities for financial help to pay for gas and such. Check with the local cancer groups to see what resources may be available for you. You will most likely be seeing doctors for many months ahead with this cancer.
I am hoping for a speedy recovery for you and I hope you find something a bit closer for any future treatment and/or follow up.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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