Eddie, I think you may have been asking me, so here's the scoop.
I had the surgery and fully expected to do chemo and rads starting around the beginning of December.
When I got the pathology results, my margins were clear, and despite the PET showing positive in the nodes, all the nodes came back negative for cancer.
I met with my surgeon, a separate ENT and my RO to discuss the next step, as I was advised I had the option of whether or not to do radiation as a result of the pathology results. In my favour was the pathology result. The negative is that there was some peri-neural involvement, and of course the high rate of recurrence for this type of cancer.
Because they do not ever plan a 2nd round of radiation, I decided that rather than doing it now and hoping to reduce a risk that is unknown, I would wait and if it recurred do the radiation at that time.
This was after canvassing 3 opinions of the experts regarding risks, and was not undertaken lightly.
Let me know if you have other questions.
Last edited by tina77; 12-04-2012 06:08 PM.