gmcraft - Thanks! I just noticed today that I'm drinking less than ordinary. Still having some rumblings from the PEG tube installation I think but I'll keep on it. They've actually scheduled regular fluids infusions as a part of the therapeutic plan but I don't want to rely on that.

David2 - Yeah - it's going to be a shock to a lot of folks when they actually see my face. I'm not even sure I'll recognize me. I was thinking of a pre-emptive shave to maybe make it easier to apply the various lotions and potionsI saw described for skin care.

Again, thanks to whoever started this thread and to all that contributed from their experience.


SCC Started in the right tonsil they think, T1N2bM1
HPV+
Lots of nodes involved including some near the carotid - didn't come out during neck dissection
Distant Met's - one in the mediastinum, some suspicious stuff in the lungs
Radiation 70 Gy in 35 fraction
Cisplatin - 3
Stereotactic rad to the mediastinum
Clean PET Apr 13
Clean PET Aug 13
Clean PET Dec 13
Clean CT with contrast Mar 14
Clean CT with contrast Sept 14
Clean CT with contrast Feb 15