Barbara, so sorry to read about what you're going through. We're all in your corner, so think of us as family.

If your eating problems stem from mouth sores I recommend asking your doc for a prescription for viscous lidocaine, assuming you're not already using it. It can really help numb the inside of the mouth - although not the throat unfortunately, and can give you a few minutes' relief in order to get some food or nutritional supplement down with lessened pain.

Of course if your swallowing difficulties are muscular then a swallow specialist is a good idea.

I also found that for radiation burns silver sulfadiazine was the best, at least for when it got really bad. Until then aquafor and the other topicals are good.

Hang in there, we're all pulling for you.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18