Xangira - You've come to the right place for the latest information and experienced knowledge from very caring people. My son did not have the exact same experience as your husband's but I'm sure others will be along whose experience more closely resembles what your husband is going through. I know it is so very frightening to see someone you love going through this. My son also had a very bad time of it. At one point, I was checking on him every few minutes and having to wake him up to make sure he took his meds because he couldn't seem to concentrate enough to remember anything. I found myself going into his bedroom just to make sure he was breathing! He did not have a feeding tube (which I wish now, he had) and the doctor gave him two "breaks", one which lasted a week. Have you checked with his doctor about what's happening with your husband or how this is affecting you? Sometimes caregivers need a little help too, in relieving the stress and anxiety. I ended up making a spreadsheet of everything that went into (and came out of) my son's body and keeping records of what meds and when he took them and noted any reactions. I included the names and phone numbers of the doctors, pharmacy and anyone, including the office assistants. I had two copies, one of which I tacked up on the refrigerator so that when I wasn't there, and my son was up, he could check off what he took and what time.

When you get a chance maybe you could include a signature line with your husbands' experience so far so others can know and respond better to any questions you might have (see mine below). Just go to the top of this page where it says "My Stuff", scroll all the way down to the Signature box and just put in whatever you like about your husband's treatment.

I'm so sorry this has been so rough on the two of you but you can get through this. Remember to take care of you, too. And let us know what is happening.