There are many who have similar diagnosis as your husband. We do understand how crappy he feels, we have been down that road too. He should have some anti nausea meds like zofran to help.

The nutrition and hydration are huge parts of treatment. If Thomas is not taking in enough calories he will wear himself out very quickly and end up hospitalized for malnutrition. This happened to me and I was one unhappy patient! Make sure you discuss his lack of eating with his doctor. try to pay close attention to exactly what he takes in every day and then check it out online how many calories are in what he eats. To be brutally honest, if he is unable to eat due to a sore throat, it wont get better anytime soon. He can take pain meds to help and try a prescription for magic mouthwash to numb his mouth for a few minutes while he eats. If he is not able to eat enough to sustain himself he will need a feeding tube. Even if he gets a tube, he still must swallow water every single day to keep those muscles active. believe it or not your body can 'forget' how to swallow.

I would ask for an earlier appointment and get his weight checked. Have a serious discussion with the doctor about his not eating. Ask for fluids every other day to help keep him hydrated.

Good luck!!!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile