 "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | It sounds like oral tongue not base of tongue... Jeff I'm assuming its on the underside of your tongue correct? The treatment you are receiving is for oral tongue not BOT - do you have lymph nodes involved?
I had similar surgery was in for ten days - minimal pain - as I was numb from the neck dissection - I looked like something out of a horror film for two weeks after that things were okay. At day 21 I went to Mexico for a week and could eat almost everything there - spoke okay. Etc.. You'll need physiotherapy to repair your shoulder and neck.
Best of luck on your surgery.
Ps the trache sucks like there's no tomorrow!!! Bring a pad of paper and a pen! Or an iPad. Usually the trache they put in for the first few days is not fenestrated. Therefor you cannot speak.
Hugs- you'll get through it.
Last edited by Cheryld; 11-05-2012 07:42 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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