I know it's the last thing you want to hear, but push through it. I promise in a couple months you will be moving on with life and thinking, "that wasn't so bad!" Or at least that it went by quicker than you thought it would.
Hang in there. You MUST get the nutrition, somehow. When do you see a doc again? Please have them check your tube. Something sounds wrong.
Don't forget to try to swallow something too. You don't want to lose that reflex.
So sorry. We understand how much it sucks. We really do.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14