 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Jay,
I just wanted to say hi from a fellow Aussie and to let you know that I have been following your posts.
The information you have been given here is first class as usual and at this stage there is nothing I can add right now.
It seems that you and Jan have a wonderful attitude for what is a very difficult time for the 2 of you and your extended family as well.
It is also wonderful to read that you have some great support getting you through this.
I just wanted to wish you all the very best for the further upcoming treatments and to let you know I will be there with you in spirit and looking for your updates.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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