Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | The doctors should have done a scan like an MRI, PET, or CT to determine how advanced the cancer is. The scan could also help with how big the tumor is. There is a type of ensure or boost made for people that are diabetic. She must get nutrition or will have a heck of a time recovering from this major surgery.
So sorry to hear you have some disputes with other family members over this. At times when emotions run high disagreements can happen easily. You are 100% correct in thinking knowledge is power. Going into a major surgery without knowing anything about what was being done is like putting your life in someone elses hands to do whatever they want and its ok. Thats just beyond my understanding why everyone isnt doing research to find out about this disease.
To me I would have to guess and say since the tumor has gone from tissue into her jaw bone, she would be classified as a Stage IV patient. Dont get hung up on Stages. Some Stage 1 struggle while some Stage IV cruise right thru easily. Ive been both and to me the mandibulectomy was one heck of a hard time. I had alot of complications and ended up staying int he hospital for 2 months. Many get thru it and are home in about 10 days. Its not easy but it can be done. I hope her mental state is in fight mode as I really think a positive outlook and being motivated to get well will help her with this. Ive always thought this helps anyway, not sure if its ever been scientifically proven or not.
Best wishes to everyone involved, especially the patient! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |