 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Certainly not a scientific study but in the 6 + years on this site those reporting the use of acupunture for dry mouth seem to be 50/50 in results and it's either it works or it doesn't and when it works it seems to be short term. I did not try anything other than say Biotene products. Their gum did nothing for me at first but now I chew it all waking hours. I estimate that I am back to appx 90% pre Tx in both saliva and taste but it's impossible to pin that % down since we all quickly forget what 100% was like.
Man you had a lot of Cisplatin, probably the most of any poster on this site. How's your hearing. I lost my high frequency in both ears due to Cis.
Our recovery can take every bit of 2 years and it really helps to consume tons of calories each and every day (I personally recommend 3000) and tons of water. I didn't gain one pound until sometime in my 2nd year of recovery even consuming thjat many calories each day.
The worst is over and now it's just adjusting to the new you. Hope you get off that PEG soon.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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