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| Joined: Sep 2012 Posts: 74 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Sep 2012 Posts: 74 | Check NIH. They have a current study for Sjogrens patients but invited me to participate as a bone marrow transplantee since the symptoms are similar. I had a single acupuncture treatment there last year and it helped both taste buds and dry mouth! They also taught me acupressure that I can do myself. At the time, I was still receiving chemo so they decided they didn't want to do more until I'd been out of chemo treatments for at least 6 months. By then, I had improved to the extent that I didn't need more treatments.
mausmarrow.com Age 59 ex-smoker 1989 1/10 dx MDS (blood cancer) 2010-11 21 cycles Vidaza 11/10 Bone Marrow Transplant 8/31/12 dx SCC left BOT HPV 16+ T1N2cM0 10/11/12 TORS partial glossectomy clear margins 10/24/12 bilateral ND/ii-iv 92 nodes all clear 10/30/12 dx revised T1N0M0 no chemo or rads
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