 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Piemetoo,
I am so sorry for all you and your husband have had to go through. It sounds like a very rough journey. I do hope you are taking good care of yourself, too, so you can be there for your husband. I just can't imagine what you both have had to endure in such a short period of time. I hope you have friends or relatives that can help relieve you at least temporarily. Do you have a social worker at the treatment center? If not, ask for one and let them know everything you need help with, no matter how big or small you think it is. People are all around you waiting to be asked.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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