Thanks for the warm welcomes. I think my docs (primary, ENT, oncologist, etc) even find it frustrating because they are unable to give me much info on malignant melanoma of the tongue, causes, survival rate, treatment options besides the surgery, etc. Besides very regular visits sometimes I worried I'm going to show up for a doctor's appointment but at the wrong doc
checkups, bloodwork, and then body scans every six months there isn't much they offer but to try and stay on top of it and request that I stay on a very healthy diet and exercise. Any changes in the way I feel or any lesions I'm to go in asap. But it will be nice to at least have someplace to go (these boards) when I need to talk, vent, cry, laugh (I joke with the docs that I've been poked and prodded, etc so much but too bad none is for enjoyment). I also tell my children that I'm one of those special one in a couple of million people to get this.
Mary