Wendy, I'm so glad things are on the improve for Steve. It sounds like he's had a very rough ride. Thanks for your input, and to Christine, Kelly and Cheryl as well.
Simon had his ENT appointment today, and the doctor doesn't think the jaw pain is necrosis, but possibly TMJ, as Christine mentioned. Christine, that may be why they don't offer HBO before radiation - because it isn't advisable to do it when cancer is present, as Wendy and Kelly suggested.
Today's appointment is 7 weeks shy of Simon's 12 month checkup - the ENT didn't see anything dodgy, which is great!
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
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