I just checked with my doctor about HBO for the necrosis I am experiencing in the tissue in my mouth. He said they do not like to do HBO until you are 6 months out from a clear PET scan as HBO is intended to increase the oxygen in the tissue and bone. If you still have a trace of cancer, the HBO may help it to grow also.

Considering your jaw issue; I have some pain also. My team is telling me that there are so many different issues involved with radiation that it is difficult to determine exactly what is causing the pain if they do not have a pretty obvious sign (like exposed bone).

I was told that it could be the result of fibrosis or it could be nerve damage or it could be deep necrosis of the bone. They said it can take months of observation to narrow this down. I am only out about 3.5 months so they are still just watching and checking my symptoms. My pain is very much less now so I am optimistic it will slowly fade away. My dentist and I are keeping an eye on my gum line and the bone there and I have a chiropractor that helps with my still muscles and the fibrosis but for now that�s that best I can do.

Hope things start moving the other way for you and you might consider checking with a chiropractor regarding a masseuse who is trained in dealing with fibrotic tissue.


Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR