Hey Robert. Too many things to respond to here. So I'll respond your original post. I've done alot of research on the Internet and elsewhere as well. Probably motivated by the same thing: fear of recurrence. You're right, most of the data on the Internet is very out dated in addition to being pretty dismal. Since I'm part of a post-treatment chemo-prevention study, I had a chance to look at some of the previous study data (none more than four years old) which supported the study in which I am participating. The stats in these studies were only marginally better, but the size of the sample groups were rather small. I would certainly be intested in seeing data you might have come across that paints a happier picture.
Since I was ranomized into the control group for my study, I don't get any of the meds. As far as I know, Acutane is the only thing that looks promising as a preventative agent. Unfortunately, Acutane is not approved for perscription except for acne. With all this in mind, I put myself on a supplemental regimine -- which I would be happy to share with anyone who's interested (but we'll need to start a new thread).
Anyway.....welcome aboard.
-Brett