Robert,

Welcome. Any studies with good stats would be nice to see. I am a numbers guy and if I have the opportunity I enjoy learning more about treatment and results for this dreaded disease. My hair never came completely out but I looked like a baby bird when I peered at the mirror walking by. My wife called me Jar Jar Binks. I think it was a compliment eek but I'm not sure!

Glad you found us and glad to have you.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023