I have been given the weekend to decide whether or not to participate in this trial. i am so lost. As of now I am leaning toward NO. I have a one month old baby and i'm reluctant to "try" something new. i want something proven.
i also have to make a decision on a feeding tube. i'm scared to get put to sleep again. my tumor is in a position that will not allow a breathing tube oraly, they have to go through my nose and it is still sore from the biopsy. FILL me full of all the knowledge i know this website is possible of doing..lol.
feel free to pm me if you have some personal oppinions that you would rather not share on a board.


Age 35, Former smoker/drinker HPV+
Ear Ache 5/12
GP for ear ache 6/18
ENT for ear ache 7/12
CT shows cancer 7/12
Biopsy 8/12
diagnosed SCC
Base of tongue right side
Barely crossed midline
Nodes involved
PEG 9/12
35 IMRT start Sept 6th
Cisplastin x3 1 down 2 to go