Claw
keith in london I am about 3 weeks behind your hubby. One thing I know I walked into this treatment looking and feeling resoably health, but my Doctor was straight from the start this is a harsh treatment, well I am feeling it but every thing is for the long run I have two beautiful cheeky daughters 2 & 3 so I though bring it on do your worse. I have days were I aint so brave.
My helpful hint get a Nebulizer it helps clear the airways and is more effective than painkillers and mouthwash, I get mine from the NHS. Love the PEG it keeps you strong. keep asking questions.
My primary carer has a little black book for all the thumps she owes me when I am well.
I dream about eating nice food that taste pleasant in the future???
You can argue all day with Doctors but everyine is trying too help and you need to accept the help. The feeling of lack of control is difficult.

All the best for you and your partner.


21st March squall cells.Endescopy not oesophagus, ENT .April endo nose CAT MRI general Panendoscopy prim-HPV 16 base of left tongue one node-stage 2.23rd of May.14/5/12 9 teeth out.8/6/12 PICC inserted.11/6/12 1st Chemos 25/6/12 2nd Chemo Cisplatin5FU:27/6/12 PEG23/8/12 Radiation finished 1/9/12.