OP Senior Member (100+ posts) Joined: Feb 2012 Posts: 151 | Well the night went fairly well. I think he woke up at 4 with a leek in the mask and it had fallen off. It took him a bit to get the machine turned off being the middle of the night but put it back on and slept till morning. It is strange the pressure that is there when he first gets in on, I can see why many people can never get used to it. I am going to give it a try to know what it feels like. The problem though this morning was he woke up and it looked like someone had inflated his neck. His lymphedema was so much worse and especially on his good side. Don't know what the connection is but hope it won't get worse tonight. His taste is off today after being almost back to normal and he says he has sores like little cuts on his tongue so back to the soda and salt.
I am really hoping the apnea won't be here forever even though they say it doesn't usually go away. If it could come on so quick, why can't it go away. I feel it might be either a result of radiation and with exercise to strengthen the muscles it could improve or a result of lymphedema or one doctor said maybe because of his hayfever allergies being back this time of the year that could add to the problem. I am not willing to add this to the new list of normals just yet!!
Husband diagnosed Oct '11 Cancer of the vocal cord Nov '11 removed right vocal cord. Neck Dissection, cancer in one node, .2, very small & contained) Jan '12 Radiation and Cisplatin, 6 doses. June '12 & Dec '12 clear Pet scan. April '13 Celebrating 1 year cancer free since treatment ended.
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