Ken,
After finishing chemo and radiation I too struggled to get enough calories. Eating was painful, tasteless and difficult by mouth for quite some time after treatment. I found myself trying to eat as much as I could by mouth to get it used to having food pass through it again. It was about 6 months before I could get enough by mouth to even think about not using the PEG anymore. It's a slow process but one you need to take slowly. Give your body the time it needs to recover before getting too worried about getting off your PEG. I wanted off right away as well and I now know I was just putting myself into a state of malnutrition because I couldn't eat enough good foods by mouth. I did start doing stupid things like just adding empty calories to try and hit the target number. I think I would have had a better recovery had I been more concerned with good nutrition and not just on counting calories.
When it comes to nutrition though, listen to EricS. He has thought me a lot about nutrition just in the short time that I have had the privaledges to know him.


Type and stage of cancer:1st - SCC left base of oral tongue non HPV, T3N1M0 hemi-glossectomy 60 node rem, radX35 carboplatnum &Erbitux X6, Peg tube, lost 55 lbs
2nd - SCC right base oral tongue, surgery, Cisplatin & Erbitux x 16
3rd - SCC right base oral tongue, surgery, hope.