 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I understand your way of thinking. So sorry to read of all the struggles you have in your daily life. Wish I could say it gets easier but sometimes it doesnt. I guess we just adapt and adjust to a different way of life.
What a trip down memory lane when I think back to what my old life and normal used to be like. I never in my wildest dreams would have thought going in for a routine J/G tube change without being knocked out would be something normal I would do. Setting up my tube feeding every night is now routine as is taking meds and worrying constantly about my nutrition and hydration intake. Its amazing the new life that we get used to living. Even with our rough patches, it sure beats the alternative.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
