OP  Contributing Member (25+ posts)
Joined: Jun 2010 Posts: 38 | Just wanted to follow up on my post of last November. I went to Hosp of Univ of PA for further evaluation. Wonderful doctors and facility. I had 6000 rads to right neck and a course of Eribitux. I then went to Beth Israel Hospital in NYC and had Brachytherapy to my tongue 3 weeks later. I was very pleased with the treatment and so far the outcome of all of this has earned me a clear PET/CT and MRI after 3 months post treatment. I continue to be monitored closely. The brachytherapy, although sounding grotesque, wasn't that bad at all and other than tenderness, healed quite rapidly. I continue to take speech therapy to "fine tune" my deficiencies and will return part time to work in a few weeks. I feel very blessed.
'08 SCC Rt tongue,part glossect.
'09 Rt neck dissect, 3 Cisplatin, 35 rad.
Aug '11 Rt tongue,hemiglosstmy, Lt neck dissect, forearm flap, 8 Erbitux,30 rad, brachy tongue.
Oct '12 SCC prev stoma site. SCC inside trachea.
Nov '12 total larengectomy, addl neck disect, pec flap
Oct '15 Myelodysplastic Syndrome (form of leukemia)
Dec 8, 2015 passed away peacefully at home surrounded by loved ones
How Cindy wants to be remembered..."I want people to realize I am no longer trapped in this body prison, and I will be free and whole. I want to be remembered by all the good and loving times spent together, not in sadness." | 
