I have that too! I asked my oncologist and she had never heard of it, but I did enough web surfing to figure it out. It started for me about 4 months after radiation ended, and I still get it. I really stopped noticing it though unless I am doing physical exercise - running is the worst. Once I figured out it was nothing serious though it stopped bothering me. Hopefully you can put it to the back of your mind also! It is the least of our worries smile


Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011