"OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | MissBazinett
Alex had something that might be similar. About 2 months after the finish of treatment he complained that if he moved his neck quickly, he got a sort of electric shock which came out at the soles of his feet. This also happened when he stepped off the kerb. As you say, didn't hurt, just took him by surprise. Unfortunately when we mentioned this to the RO he looked at us like we had gone completely mad and offered no explanation other than to say he had never heard of such a thing (code for "don't bother me with your side effects - I saved your life didn't I?").
Like you, we were relieved to read about L'Hermitte's sign which described Alex's symptoms to a T. Sometimes it is just nice to know you are not a freak.
The good news is that it went away eventually although Alex can't remember when.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
|