Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | I fortunately don't have that side effect, but it does sound like Lhermitte's Syndrome (Lhermitte's Sign)to me. I'm sure there is more info on here, just can't find it at the moment. Try to search for it. I think it's spelled correctly. I know others who have it and they described it just like you did....like plucking guitar strings (sort of a vibration) when they put their chins down towards their chests. Hope you find some relief.
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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