Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thats where I thought I saw your story, on the facebook chat. My online time is primarily spent right here. Im not part of the ACN site. I have enough to handle on the OCF forum.
Once you post a couple times you will get the hang of the forum. Try adding a signature when you have time. It helps us to get to know you quicker. Click on the "My Stuff" tab, then on "edit profile". Scroll to the bottom and type your info in the white box and "submit".
Ive been thru quite alot in the past 5 years. Every time I got better the cancer came back. Funny how I was so paranoid about getting a recurrence I would never even open the recurrence tab. It didnt prevent me from getting sick again. It takes work to keep a positive outlook sometimes. With having 5 children Im sure they keep you very busy. My children are grown up now and I miss having little ones around. When your mind wanders to the "what if it comes back", try to limit how long you will ponder that thought and then turn it off and go do something productive. Cancer can be a thief and steal your time away from you. It can be debilitating making you worry so you cant do anything else. Make the very most out of every single day and you will have no regrets when you finally get to go to bed at night.
Glad you have joined OCF. It really is a great site full of knowledgeable people who help support each other. Its also the largest online support group of oral cancer patients and caregivers. If you need help navigating, please let me know. A couple tips, click on the topics on the left. That will open up all the posts with the most recent up top. This way you can keep up with all the latest posts. I also will click on the Active Topics tab on the top to see all the newest posts. Only problem with that would be you may miss some newer posts if nobody has written on that thread for the past couple days. Thats why I go down the left side and open the tabs so I can see all the threads.
If you need help with abbreviations check out the FAQ tab. If you find you made an error in your post, it can be edited for 3 hours after its published. If you want to add something to your post, its ok to edit it. If you want to ask a couple more questions then its best to begin a new post instead of adding to whats already published. Just ask if you need any other help and one of us will guide you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |