 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Cathyl!
I am squeeling with delight at your good news! I didn't have any surgery but I know how tough the radiation and chemo is. I hope they are doing both. I lost 70 pounds from August to February and have finally but about 15-18 back on in March. It only took about 4000 calories a day for weeks but once it started coming back, life has changed immensely for me.
Good luck on all of your treatments and recovery process! There are lots of resources if you need them. The Procrit people have a neat web service that allows you to sign up when you start radiation and they send you emails of what to expect in terms of side effects, etc., as you progress through your treatment.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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