Liz

First, not fair! You don't deserve this at all. I'm sorry you have this. I had to look up Frey's syndrome TX because all I knew is that it involved sweating so the first thing I thought of was to ask your doctor for Robinul. According to Dr. Google, the TX for Freys does include glycopyrrolate (generic for Robinul). The pill stops all sweating but the side effects include very dry mouth and sore throat. But if you only took one pill a day or even every other day,instead of the usual three it could work. (I have been trying Robinul)
Scary to read how Frey happens, the nerve attached to the sweat gland instead of the salivary gland.
Hope someone here on OCF knows more, but I could not bear to see one of your posts go unanswered for three days.
Charm



Last edited by Charm2017; 06-14-2012 11:58 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13