OP  Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Anyone experience Frey syndrome? Almost 3 years out of treatment and I just started developing this. It happens in front of my ear (sideburn area) after I eat at times, so weird!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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