Oh, wow, I have this, too, and I am also three years out. My doctors have no clue, either. Another poster referred to it as "football tongue". It never lasts long, a minute or two at the most, and I haven't been able to pinpoint a reason, either. Two of my doctors thought that it almost sounded like an allergic reaction, but there isn't anything that would seem to trigger it. I would guess that it is just another example of "the gift that keeps on giving" - radiation.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.