John has had a "sore" on the back of his tongue since the middle of April. He made an appointment with his ENT for a routine check up the beginning of May. He looked at it with a light, scoped him, physical exam etc. His conclusion was that it was an abrasion from his mouth being dry and rubbing on his molar. John had an appointment with his dentist last Tuesday for a cleaning and check up. He checked the spot and also didn't seem concerned about it but gave him a referral to see an Oral Surgeon. He also has a root canal that has failed and wanted him to also check that tooth for possible extraction. I of course printed out information for John on the Marx protocol for any extractions done after radiation treatments.

So today John had his appointment with the oral surgeon. He looked at the sore on his tongue and didn't seem to think it was anything to be concerned about. He looked at the x-rays for the tooth that had the failed root canal. He told John he recommends having the root canal redone but that his 4 wisdom teeth should be extracted. He said to use vitamin E oil on the sore and if it is still there in 6 - 8 weeks that he would remove the entire thing and biopsy it. He said he would contact John's RO and find out exactly what areas they radiated and that if they used enough "shields" he shouldn't need HBO dives before extractions.

Neither John or myself feel very comfortable or confident with this information.

My questiono is how can we find an oral surgeon or dentist who deals with post-radiation issues? We live in the Philadelphis Suburbs. Wanda


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2