 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hi Craig! Welcome to OCF! Ive also had a mandibulectomy but no bone was moved to my jaw. I have trismus as well. I also still have a significant amount of pain every single day in my shoulder, face, jaw and neck areas. I am wondering if this pain you have is something new or if it has been there the whole 5 years? In my opinion, if it is new pain then go get it checked out. If it has always been hurting I would just give a call to your doc and ask if it could be an issue. Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
