I would think when you see your doctor--is it this Wednesday--he will surely take care of this! I am shocked really that the nurse or PA is not concerned about your pain and lack of mobility. I would think a PT appointment would be suggested by them to anyone with shoulder issues such as you describe.

A physical therapist, a speech therapist, an occupational therapist--any of these can be a certified lymphedema specialist. They also have to do extra training to know about head and neck. I found this out when I did the research to find someone near me. I think that the lymphedema massage is one of the more beneficial things I learned to do. It was well worth the trouble it took for me to find someone. And it was no problem to get my doctor to prescribe it for me.

Hope you get some help this week. Some nurses are gatekeepers and seem to think the patient is exaggerating; thankfully most are not that way.
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021