Rich,

Wow brotha welcome to the fold my friend! I'm suddenly sheepish as I'm thinking you've read some of my posts while lurking over the years smile Glad you've finally decided to share my friend...if anyone can help we can!

When you say everyone says that the stage I 3 x recurrent tongue cancer is unusual, you're talking to people unfamiliar with this disease sadly. If that's your medical professionals I'd be concerned because they are not far sited enough to pick up on trends over years of practicing. That to me would indicate they don't see enough cases in a year and are not equipped to handle you my friend.

We see this very often on these boards, especially with early stage tongue cancer, it's particularly aggressive and very deadly. I'm not telling this to scare you, I'm sure you already are concerned enough...but your medical team isn't and that's dangerous for you.

Christine's advice is spot on, give your medical professionals the finger and get your happy ass to a Comprehensive Cancer Center (CCC) where they have more experience. The best advice anyone can give you...is get the absolute "BEST" medical advice available to you, it's "your life" we're talking about here.

Here is the list of CCC's http://oralcancerfoundation.org/resources/index.htm#centers

Get to the big boys, and if you're already at a CCC get to one ranked by US News Top Hospitals. health.usnews.com/best-hospitals/rankings/




Hang in there, use us for support.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.