Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | My side effects were pretty bad, too. At one point they had to stop radiation because my neck was so badly burnt. However, they gave me some cream, which helped, and I was able to complete my treatments. I never had too much trouble talking, but proper nutrition was also a problem. I ended up in the hospital after I had completed my treatments with an IV. That scared me enough that I started using my PEG more because I didn't want to have to go back to the hospital. Make sure you get enough nutrition and stay hydrated. At one time I felt so bad that I didn't even feel like getting dressed.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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