Hi Kathy! Welcome to OCF! Im so sorry you are going thru such a painful time right now. Have you seen your ENT about this? To me it sounds like you have osteoradionecrosis which is extremely painful. Its where the jawbone dies from the radiation treatments. The bone can breakdown and splinter making tiny shard that will stab thru your gumline. Ive had those shards happen to me and it was agony! Mine was from having my teeth removed.

Is it from the pain that you cant open your mouth? Try to take some pain meds and rinse with magic mouthwash to numb your mouth. Then slowly and gently try to stretch open your mouth as wide as possible, hold it for 10 seconds and repeat several times in a row and do several sets of this per day.

i would suggest you get to your ENT right away. You may need to have a mandibulectomy which is where your jaw is removed. Its a big surgery but you can get thru this! You may only need hyperbaric oxygen treatments (HBO) to help heal your jaw. Its really difficult to help over the internet. HBO is no big deal, you go into a glass tube and breathe pressurized oxygen for about 2 hours a day for at least 20 times. Its time consuming but it will help you to heal. You could also need strong antibiotics to help. I did a picc line with IV antibiotics and HBO to heal my jaw and it worked very well.

If you cant eat are yo using a feeding tube? You must get your nutrition or you will not heal. Try adding some high protein to your diet to help heal you faster.

Best wishes!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile