Robin
Hey, that is exactly what I am doing: LIVING LIFE with a permanent feeding tube. I failed 4 MBS tests despite hard studying and therapy including Vitastim,
There are lots of people in the same boat and it's not bad.
Lots of tips and tricks. Definitely ditch that dangling old tube and get a "button" (low profile gastronomy tube) preferably an AMT not a Mic-key (Kimberly Clark) after six weeks.
Plus consider a blenderized diet. Also I am free of the pump (never used one) and just syringe (bolus) everything all the time, including wine.
Post again and let us know how you are doing. Oh, and nice Trifecta of OCF alpha males for replies in your first post
(inside joke if only to me - ) Hope your tube is only temporary
Charm

Last edited by Charm2017; 04-30-2012 04:11 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13