"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi there, I'm from Toronto, (well Mississauga...) where we're you treated? I know radiation is one of the treatments for this but usually oral cancer - tongue, floor of mouth, gum, and soft palate - is treated first with surgery - then rads and chemo (if needed) -I was a T2 at diagnosis - my dr. had already booked the surgery with the plans of removing 40 lymph nodes - and resecting my tongue with a graft. One lymph node became cancerous between DX and surgery but it didn't matter as it was coming out. I then had 33 radiation with cisplatin. I'm 1 year out of surgery - almost 11 mos out of rads. Radiation wasn't a picnic by any means but I muddled through it. I'm still best friends with my water pik and manuka honey... I get the occasional sore but for the most part feel ok and it's gone in 3-4 days. But I know it's still early after treatment. Sorry you're still having trouble I find that if my mouth gets irritated its something I've eaten - generally I take a day or two off and use gentler choices, by staying away from acidic foods. Tomatoes, vinegars, anything with a rough texture (crispy fries etc..)
One thing I do find that helps is diet, make sure you're getting enough protein. (preferably non animal based) I generally have a big protein shake in the morning for breakfast. And have my vitamins etc. which helps with immune system and healing.
Sorry you're having such long lasting effects - I imagine I'll be in the same boat at some point - but the plus is you're 3 years out! Congrats! Ps we're the same age...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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