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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Terri, you are past the half way point now. This is where the going gets tough but the tough gotta get going!!!! Every single day push yourself to consume 7 cans of formula and a minimum of 48 oz of water, no matter what! How many calories are in one can? Your body needs at least 2500 calories per day. If you have been getting that much and still are losing that kind of weight then it is not enough. Try the Carnation very high calorie ordering it thru the green box for OCF's Amazon link. If you order today you will have it by the end of the week. You MUST turn this around today! I am not trying to scare you but when the weight starts falling off you must take immediate action and stop it as it is a sign of your body fighting too hard and you not giving it the fuel it needs to do the fighting. I know, Ive been thru this and speak from experience. I spent many a night laying in a hospital bed for exactly this reason. I know how difficult it is but honestly things will improve and you wont feel so bad if you get enough calories and water every single day.
PLEASE, push yourself! I do not want to see you in the situation I put myself into. I honestly felt so horrible that I thought I was dying. I couldnt believe it was only malnutrition and dehydration making my body ache from head to toe. Things unfortunately will get more difficult as the days go by so please get a handle on your intake now so you can begin to feel a little better. If necessary, a nasal feeding tube can be placed if you cant take in enough by mouth. This requires no surgery and can be done very easily.
For coughing try musinex or robutissen. I still need cold meds for my sinus damage. I take childrens liquid benedryl.
I wish I could be there to help you in person. I know how rough this is but in a few more weeks it will be over and you will be recovering. Best wishes with every single day!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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