Becky, when people fill out the registration to use the board there are a variety of check boxes that allow them to have the "degree" of contact they want with other people. Some for whatever reason do not want the link which lets people email them turned on, some won't even let the foundation email them. some won't allow private messaging, a service of the message board that keeps your conversation with another member within the board but private. The person that you wish to email has made these kinds of selections. Some people are afraid if they put their email address out there ( you have to clck a slection to contact them through it) they willl get tons of junk mail. The foundation does not share anyones information or email address with any other organizations, companies, or anyone else... believe me I know what a nightmare tons of spam is, and the foundation would never let that happen to our participants. But people must have their reasons for shutting of this function of the board. Even as the board monitor, I can not write to them.....hopefully they will read your post and contact you directly or choose to turn on the email address function of their profile so that people can talk with them privately.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.