Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Welcome ASYOUNGAS16, Please feel free to lean on us here and I hope things go well for your daughter! She is much too young to have to face such things.
I will caution other posters to be careful about offering advice about things that are not the same as we are familiar. I have not heard of this cancer either and would only be guessing about treatment options. Since most of us are not trained in medicine we could be giving incorrect or confusing information.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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