Kerri,
I too am followed by a surgical ENT oncologist, and could see my RO if I needed it, but since my main treatment was surgery, that is who I see. I had an extremely tiny lymph node, could only feel it sometimes, show itself during radiation, but nothing showed up in the ultrasound they did then, nor any CT.
At the time it was mentioned to me it could be from surgery (scar tissue?). I can't find it anymore. But I think you're right in giving them a call.
Regarding your jaw/ear pain, it might not be, but I'd consider TMJ. I did not realize that anxiety could get that cycle going like that, but it can. I am sure you have anxiety like the rest of us. When I visited the oncological dentist at MD Anderson, I mentioned the ear & jaw pain, he pressed some areas, does this hurt, does this, etc. At the end of the exam, he looked at my husband, who is a GP dentist, and said, "it's TMJ." Now that I realize it I can head it off by telling myself that is what it is a working on relaxation.
That is not to say that jaw/ear pain should not be a concern for some people! That's the uncertain and scary part of this disease. But for me it is TMJ.
I am not diagnosing, you understand, just saying it's a possibility.
Best,
Anne
Last edited by AnneO; 02-04-2012 03:20 PM. Reason: left out word