Welcome to OCF. You are dealing with alot when going thru treatments. I know how brutal it can be. Alot of us have used the fentanyl patches for the pain. I loved them since you only have to change it every 3 days. Its very easy and is the strongest pain medicine out there. Just make sure if you use them to follow the directions exactly, no hot showers, bending or tearing the patch, etc. It will take about 24 hours for it to kick in. I would guess that since your pain is that bad that you would need 50 or 75mgs. It can go higher, I was up to 150mgs for about a week. There are a few on here who get some help from using MJ.

Everyone is different so we all will react in our own way to things. I would say that most of us began to feel a little better about 2 or 3 weeks post radiation. Its baby steps for a fw weeks after you finish. You should feel almost human after about a month post rads.

Make sure you are getting 2500 calories and 48oz of water every single day. I know the PEG tube isnt fun but it is a tool to get you thru treatments. Also keep swallowing every single day to keep your muscles from forgetting how. Sounds odd but it isnt easy relearning how to swallow.

Here is a list of foods that should be easy for you to eat.
http://oralcancersupport.org/forums/ubbthreads.php?ubb=showflat&Number=94621#Post94621

Best wishes with everything!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile