My story:
I am 43y old male, married, father to a 6y and 2y daughters. I live in Ancaster (a suburb of Hamilton, Ontario, Canada... near Toronto). I have been a registered nurse for over 20y.
I noticed a lump under my L jaw in late summer 2011, got an ENT appt and FNAB, and was told SCC Sept2/11. An appt at my cancer center could not find the primary. Sept21/11 left tonsillectomy confirmed it. Started 35 IMRT, 3 Cisplatin week 1,4,7 on around Oct17/11.
I had a setback, stomach tube infection after my 2nd chemo and rads were suspended a week. I finished treatment Dec12/11. Near the end of treatment I was told I was p16+ (protein marker for
HPV). I never smoked tobacco and I am not a drinker. I socially smoked marijuana since I was 19, there were years that I went without especially the last few years having had children, and times at peak, I smoked once/twice per week. I think that will haunt me despite being p16+ as it would increase my risk I believe.
I currently give myself 2 cans overnight via my tube and drink 3 through the day, eventually I will drink them exclusively. Every few days I try to eat something. I know I have several months of healing in front of me. I am currently down about 11lb from my healthy wt of 145lbs in the summer.
Lately, I've been worried about the residual lymph (was 1/2 golfball, now 1/2 peanut). A white piece of (scar?) tissue on my L tonsil bed before I started treatment, and an open sore on the L side of my tongue at the back. In essence, that treatment was not fully effective. I did not suffer mouth sores through treatment.
Being stuck at home and internet access is terrible for anxiety... stats, recurrence, teeth problems for survivors, you name it.
I see my chemo onc Jan4, and rad onc Jan13/12.