Thanks for your responses. This truly is a lonely place to be. As the caregiver you try to be positive and upbeat but the longer this goes on the more quiet he gets. As far as where he will be in Alaska...he is on the arctic slope. As desolate as you can get, but it is a camp and they do have medics. In an extreme emergency they would fly him out.
Yes, I do think it's too early. I'm beginning to hear doubt in his voice too, but if he doesn't go back he will be terminated and he is our sole provider. We adopted 3 children 2.5 years ago and took my 86 year old mom in a year ago August. (He may want to go back to get away from the zoo!!) The hope is that if he at least makes a presence but can't stay the full 14 days they will keep him on. Then he would come home and have 4-5 weeks again. Not sure if that would fly the next time though. He usually works 3 weeks (21/12 hour days)straight, then comes home for 3 weeks.This first hitch they are letting him work just 2 weeks as it is. I don't know. We have tried to get rid of debt in order for him to be able to either not work or work locally, but of course we were living the American dream when this happened. As everyone knows, we weren't expecting it.
Hopefully the CT tomorrow is clear. Again, I know you've been where we are. The Dr did clear him for work, but he gave him some physical expectations of which he hasn't even attempted. I am also watching him get smaller and smaller. He had the 50lbs to lose, now it's beginning to push it.
Anyway, thanks for listening!! And I don't know if I mentioned my biopsies, but they came back today benign. Phew!


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14